Showing posts with label DBlog Week 2011. Show all posts
Showing posts with label DBlog Week 2011. Show all posts

Sunday, May 15, 2011

Saturday Snapshots


Saturday Snapshots: Inspired by the D365 Project, let's snap a few more D-related pictures and share them again.  

A picture is worth a thousand words, right?  I'm a big fan of using pictures to tell my story, and I've done it a time or two before.

I was trying to figure out the best pictures to post all day, and came up with nothing.  And then I came across this picture that my friend took last summer.  I think it sums up everything I was trying to say with other pictures perfectly.

Thank you Karen for hosting DBlog Week!
If you want to see others' snapshots, check them out here!

Wednesday, May 11, 2011

Ten Things I Hate About You



Ten Things I Hate About You, Diabetes: Having a positive attitude is important, but let's face it diabetes isn't all sunshine and roses (or glitter and unicorns).  So today let's vent by listing ten things about diabetes we hate.  

I hate that you took my favorite counselor from me when I was a kid. And that that made getting sick in college really scary.  And that when I did end up in the hospital, and awake the thought passed through my mind "at least I didn't end up like Jill."

I hate that you scared me and my parents to death after a 24 hour urine test, simply because we didn't know I wasn't supposed to collect while I had my period.

I hate that because you broke, people think it's my fault if the amount of glucose in my is too high or too low.

I hate that there are kids out there (and probably adults) who use you to get attention.  I hate the situations it has put them in and I hope that there is someone out there to support those people.

I hate that not all things that can influence my glucose are easily measured and predictable, like stress.

I hate that what I've been trained to recognize as symptoms can also be real people feelings.

I hate that while I'm sitting here writing this, I'm just getting mad at you.  You're forcing me to turn away from my optimism and I don't like how it's making me feel.

I hate that you make me feel weak.  I am not weak, but sometimes you take all the power away and I feel weak.  Not just physically, but emotionally.  And bouncing back is HARD.  You send me sweats and shakes and shivers and tears and none of them are welcome.

I hate all the space and money you take up.  Glove compartment, closet, headboard, bedside table, pantry.  And that's just supplies.  Never mind the extra file folder I had to buy in order to keep all your doctor appointments organized.

I hate that some of my best D friends live 3,000 miles away.  The experience is totally worth it, but having my support system so far away sucks.

Thank you Karen for hosting DBlog Week!
If you want to see what other's hate, check it out here!

Tension, Twizzlers, Trips, Tape and Timing



Diabetes Bloopers: You probably realize that things can (and will) go wrong.  But sometimes the things that go wrong aren't stressful - instead sometimes they are downright funny!  Go ahead and share your Diabetes Bloopers!

This blooper is about working as a camp counselor at family camp.  First of all, families who have been to family camp: let me tell you this.  Family Camp is amazing.  But they put it at the end of the summer, when we've been working with other children all summer.  We're tired, and we're exhausted, and most of the time getting ready to go back to college and wondering about parties with our friends.  We're learning from you, but we're also trying to teach you, even if you're not receptive to it.  As a kid, I never did family camp (I don't think it was an option).  But, I was a kid, and now I'm a successful adult.  I am proof that while you should worry a little, it doesn't need to consume you.  
At GCC, families stay in the cabins, and the CWD are often on the top bunks.  It's also the only time of year I had boys in my cabin (not to mention you dads).  We have to be "properly dressed" at all times and we need to be aware at all times, and we need to follow our protocol at all times, even/especially if it is different from what you are used to at home.  I was on duty during one of the night checks, meaning I'm awake from about 12-4.  And if I didn't nap before, I've been up all day.  I tested one little boy, and he was low.  I gave him his juice and then in 15 minutes I went back to test again.  At this point he was okay.  So now he needs to have PB crackers.  He was crying  because he doesn't like peanut butter.  But at the end of the summer, we don't have other food options, we're running on what's left.  After 5-10 minutes (I had to wake up other counselors to test the other children), he still has not eaten anything.  And then I hear "I'm allergic, I can't eat that."  I know that he's not, because I don't have any PB allergies in my cabin.  So I tell him that I know he doesn't like it, but I know you're not allergic, because I would know.  One of his parents was awake, which was awkward enough, but they weren't interfering (thank you thank you thank you!)  Finally, the child ate the PB crackers, and that took about another 15 minutes.  (At most, we like this to take 5 minutes.)  Since this midnight check took so long, and I only have a few days left with my friends, we decide to stay up talking.  Keep in mind we're in the staff section of the cabin, with notes from the guys, pictures from Cosmo, and tampons all on the counter.  And all of a sudden the father of said PB child comes flying through the curtain.  With his child.  And the child has red blotches all over his body.  I get one of my co-counselors to go get the nurse on call, and guess what, PB child is in fact allergic.  It was not life-threatening.  But the child hated PB so much that they never forced him to eat it.  And here I come along and "discover" this.  He was given Benadryl and he was fine.  But that took about another hour (I'm not exaggerating).  This was hard, embarassing, and life-learning.  When I went back on duty at noon, I sought out those parents to see how this child was doing; I apologized for causing this to be found out, and I asked how he was doing.  Unless you knew what had happened the night before, it was not clear which child this happened to.  THAT is what I call success.  
If by some chance you are those parents, thank you for being you.  You were kind, non-judgemental and understanding.  Not all of the family camp parents would have been that way.  I am sorry though.  I hated every minute of trying to get your child to eat the PB, but it was just my job.  And I'm sorry of the outcome.  Now when children tell me they are allergic to something, it strikes a nerve in me and I make sure that whatever that is is nowhere near them.  And then I find proof later.



Now I have my funny bloopers!  I'm going to start off with a story of my mother's.  Mom stayed home with me when I was a kid, and then when I was school aged became a substitute teacher.  She would generally be in the same school that I was in at the time.  When I was in middle school, there was a day she was the in-school-suspension teacher.  And as she was watching these kids, one of the boys (scary eighth grader!) pulled out a packet of Twizzlers.  Being in suspension, these kids weren't allowed to have anything really.  So my mom went over to take it away.  "I need this, I have diabetes."  Instead of the "no you don't, the nurse didn't tell me" route, mom took a better one.  "Oh, what was your reading?  Can you show me on your meter?  What insulins do you use?"  From what I understand, the kid sat there dumbfounded, his friends snickered at him, and the Twizzlers ended up in the trash.

As a kid, my mom went on every field trip.  Whether because I was shy, had diabetes, or she stayed at home with me, I don't know the reason.  But I always loved having her there.  The first field trip she didn't go on was when I went to Florida in sixth grade.  There were about 10-15 of us who went.  And it was the first field trip my mother did not go on.  One of my best friends was there, and her mother was one of the chaperones, along with the Principle of the school.  Clearly I was going to be well taken care of.  We got to go to a bunch of different Disney parks, and got to go behind the scenes to see how different things were made/produced, etc.  (If I could remember, I'd share those details with you.)  For some reason, it was decided that while in the hotel, my diabetes supplies would go in the safe.  And me and my friends mom would know the combination or have the key or however it was that it opened.  And as a kid, we had a poke bag.  It was always stocked and you picked it up and went.  When it was time to head back to the airport, I picked up all my things and went.  And as I was sitting on the airplane about ready to eat my lunch, I went to get my meter and couldn't find it anywhere.  I asked my friend.  Neither of us could find it.  Well that's because it was still in the safe in the hotel room.  I ate my lunch, and I made it home safely and my meter arrived in the mail later that week.  But oh man, that mom was so nervous!

In Eighth Grade, the class took a trip to Washington D.C.  We got to see all the sights and yadda yadda yadda.  It was a rainy week and I didn't quite enjoy myself, but not the point of the story.  One of the parent chaperones was a nurse, and so myself and the other CWD were in her group.  She would ask us what our BGs were in the morning, watch us take our shots, and make sure we were taking care of ourselves.  Every morning she would knock on the hotel door, come in, check my meter (or watch me test if I hadn't gotten to that yet), and then make sure I took my shot.  Also, being in eighth grade, and being on a co-ed hotel floor, there was tape across every single door to make sure there was no silly buisness happening at night.  So after the nurse left our room, we walked out of the door.  Well, the teachers hadn't checked the tape yet, and ours made a nice loud rip.  Put four thirteen year old girls in a room, who are goody-two shoes, and they're the ones who rip the tape?  Shrieks filled our room with thoughts of "what are we going to do?"  The goody-two shoes bit helped us, and we frantically told the teachers what happened, and whether they believed us or checked with the nurse, we were not in trouble.  But our stress level for that day certainly started higher than anticipated.

Maybe I've mentioned this before, but Independence Day is a big deal for me. :P  So one year when I was in college, I had some of my friends join me at my aunt and uncle's lake house for the festivities and then on to Six Flags the next day.  This included swimming, tubing and water skiing.  I've been water skiing since I was nine, and I love it every single time.  I'm very unassuming, and one of my friends was really impressed.  Because, real life people don't water ski, that's just far-away people.  And as I climbed out of the water "Hey, I thought you were supposed to take that off in the water."  And I tried to play it cool since all the adults were there, but inside I was FREAKING OUT!  I dis-connected, dried it off as best I could, and went on with the rest of my day.  And the day after that, and the day after that, etc.  Until a few weeks later when I was working as a counselor at Camp Carefree and it died on me.  Boo Lantus.  And everyone said "what a horrible time to lose your pump!"  And I said, are you crazy?  I'm surrounded by diabetes experts everywhere I turn.  There is no BETTER place for a pump to die! (Besides, getting it to the camp in the middle of nowhere).

And This. 

Thank you to Karen for hosting the 2nd DBlog Week!
If you want to see others' bloopers, go here

Tuesday, May 10, 2011

I Needed A Second Letter



Dear Karen,

Next year, please get a sponsor.  Maybe Kleenex or Puffs or some other sort of tissue company.  I don't think I speak alone when I say that I'm covered in tissues when reading DBlog Week posts.

Thanks,
Briley

I Miss You



Letter Writing Day: Write a letter to diabetes if you'd like, but we can also take it one step further.  How about writing a letter to a fictional (or not so fictional) endocrinologist telling the doctor what you love (or not) about them. Whomever you choose as a recipient, today is the day to tell them what you're feeling.  

Dear Ped Endo,

I wish that I appreciated you when I had you.  But that's not true either, I did.  I don't really remember you from when I was first diagnosed, but you were always my doctor.  I do remember when I was 8 years old and our insurance didn't cover you anymore.  I had to go to an adult endocrinologist and the ONLY good thing was the way they tested my A1C.  All I knew is that this man was not like you and that I just wanted you.  Getting you back was amazing.

You surprised me quite often.  There were times I thought I was doing good and you were displeased with my effort, and when I was scared to see you after my hospital stay you didn't mention it at all.  I was excited that I wasn't going to have to change doctors until after college, but with the rise of endocrine disorders, that changed.  And in those years, I've heard about you a few times from one of your patients and I've written to you a few times, but I still wish I could say that you are my doctor.  You will always be my doctor.

None of this sounds right to me.  None of it says how much you mean to me.  No words that I can come up with let you know how awesome you are.  You were the best.  You should give classes on bedside manner and listening to patients and how to connect.  More than anything, I miss you.

Sincerely,
Briley

Thank you Karen for setting DBlog Week up!  If you want to see everyone else's posts about their letters, check them out here!

Monday, May 9, 2011

Admiring Differences



Admiring Differences: Let's talk about how great it is to learn from the perspectives of those unlike us!  Pick a type of blogger who is different from you and tell us why they inspire you- why you admire them - why it's great that we're all the same but different.  


When I first started blogging, I wanted nothing to do with other types of blogs except those of people with T1.  At that time, I was finally starting to take control of my D life, and I didn’t really have space for other types. Especially parents of children with Type 1.

I had been dealing with burnout off and on since I started college in 2003.  And my parents supported me the whole time (not having burnout, but, you understand).  And I don’t know how many times I heard “what was your last reading” “did you test before you ate that” “when’s the last time you exercised” etc etc.  And my favorite has always been “it isn’t that hard to test.”  That’s true, its not.  But it is easy to forget and it is easy to just not care sometimes.  And it’s especially easy to not care when I had no motivation.  Sure, there was the high A1Cs and the hospital stays, but the day to day motivation just wasn’t there.  When I started my blog, my internal motivation was finally there. And that made all the difference in the world.  But I couldn’t read the parent blogs.  It was as though if I read the parent blogs, then I was okay-ing nagging.  And I hated the nagging.  (I still get asked the questions all the time, but now that I am caring about my D, they seem less accusatory.)

As time has gone on, I’ve become more and more open to the D Mom Blogs.  And especially how they compare to what my mom must have been feeling like.  We didn’t test a million times per night, but I’m sure she still felt the stress of taking care of me.  I started slowly with the blogs.  First it was Candy Hearts, and it stayed there for a long time.  But then I added Sugar Kids, D-Mom Blog, and D-Dad.  As time goes on, I’m more open to D Parent Blogs.  They help me find perspective.  Especially to know how it is that I have become an adult with T1, and all that that took.  


Thank you Karen for setting up DBlog Week!
If you want to see who other people admire, go here!