Rebelbetes

I have this friend, who I've written about before, who inspired me to start this blog (without really knowing it) and who I've been trying to get to guest post here for quite a while.  (She's the one who convinced me to run 10 miles too,)  She just graduated college though, and I always said "when you have time."  Well now she has time.  Enough time even, to start her own blog.  She recently joined twitter, tries to get to #dsma chats if I text her early enough, and now she's jumping in with both feet to the blog arena.  Head on over and welcome her!

How to Bolus

Found

The other night I went out to dinner with Girl Genius, Boy Genius and Mom Genius after the ballet recital. After I look at the menu (and decide that I'll be getting a salad and ice cream) I test and bolus for my BG.  We're in the middle of a heat wave here, so I was in a sundress and therefore the pump was hidden.  This new handy meter-remote came in handy.  As I was bolusing, Mom Genius asked what I programming.  I explained how it saves everything, but I'm actually bolusing since my pump is under my dress.  And then we hear "Well that's okay.  You can lift up your dress to bolus."  Mom Genius and I both look down at Girl Genius wondering if she really just said that, and so I said "It isn't appropriate for adults to lift up their dresses, especially in restaurants."  And then we went back to discussing ice cream.  Even though every time I think back on it, I 1. laugh and 2. love her innocence.

A DOC favorite

A Letter to the People on the Sidewalk

No, I'm not pointing at my cleavage

Last night after work I headed out for a run.  When it comes to diabetes and running, I'm a minimalist.  I bring glucose and that's it.  Those arrows in the picture, that is my glucose.  (And that is me immediately post run.)  And here is my letter to the people I saw out there last night. 

Hello other runners, walkers, cyclists and citizens, 

   First of all, take the time to look up from your cell phone when the sidewalk is narrow.  I'd hate to swat that out of your hand by accident.  Secondly, I realize that my shirt is probably riding up and you can see my belly and no, I'm not doing this on purpose, but it's flipping hot outside so I'm not wearing sleeves.  Also, I don't look like the other runners out here, but I'm out here, so give me a break.  Most importantly.  STOP STARING AT MY BOOBS!  They look teeny in a sports bra, so I know you're not actually staring at them.  You're staring at the white thing bouncing up and down in there.  Guess what!  It goes with the pink thing bouncing up and down on my hip.  And yes, it's making that skin even more red because I had to open it beforehand so the wrapper is jagged and irritating.  But it's better than getting stuck out there low.  What's low you ask?  Low is when I exercise and my blood sugar goes low and I could pass out.  So yea, the irritating wrapper, I'll deal with that.  But keep your eyes to yourself (except for you, toddler, you were adorable, and you were just being held at that height, it's not your fault)!  I would like to not take it with me, but that would be foolish and irresponsible.  I went through those days and I'm not going back.  I don't stare at your arms where your ipod is, or your head where your helmet is, so leave my freaking boobs alone!

Thanks, 

Your T1 Neighborhood Runner

Climbing Up

I went out to meet a new group of people and enjoy rock climbing in the process.  If you know me, you would say "Wait, didn't you try rock climbing when you were 12 and hate it?"  And my answer would be yes.  But, that's a long time ago so I decided to try it again.  I checked out the website and it said a lot of people use it as an alternative to a traditional gym.  So I had to figure out the best way for me to D.  But I also had to account for the stress of dealing with my fear of heights and the stress of meeting an entirely new group of people.  And I had been dealing with what seemed like consistent yet unpredictable lows.  And I didn't want a low to sideline me.  I decided to reduce my basal rate down to 75%.  The good news is I never went low.  But I did consistently climb.  (And I'm not talking about up the wall.)  I don't like watching my numbers go up, but I honestly think it was more related to stress rather than not enough insulin.

When I was putting on my harness, I tried to wrap my pump in my t-shirt, but nothing stays exactly where it starts.  As I was climbing up in the beginning, my pump started swinging.  The woman belaying me told me my camera had come loose and did I want to throw it down to her?  I explained how I can't because it's an insulin pump.  I hadn't really wanted to, but sometimes you just have to tell people about diabetes.  And it worked in my favor because any time they noticed the rope was near my pump, they would alert me and I was able to slide my pump to a different spot on my waistband.  It was good to be aware.

Work with No D

All week Girl Genius has been talking about graduation tomorrow.  The four year old munchkin (which I like to call her, but she says "that's for tiny kids!"),  is starting Kindergarten in September.  I can remember my own Kindergarten graduation, and I remember memorizing a poem to recite, but I was 5, it's not THAT big of a deal.  Except that when I drove up to her school this morning, the tents were out, and all the extra hands were on deck and this wave of memory came crashing down. And I just want to pick her up and squeeze her!  I can remember meeting her in October 2009 when she said "I'm three, and I still suck my thumb, see!"  And when I babysat the next month and ended up at Boston College instead of her preschool.  And she didn't say a word the whole car ride!  (Crazy!)  As I drove away this morning I had tears in my eyes.  I know that I'm an emotional person, and that I cry at the drop of a hat, and that I get really attached to people, but I didn't think I would feel this!

Congrats Munchkin!  You're amazing :)

More Low

Like I mentioned the other day, I've been going low, a lot.  My basals are down.  My ISF has changed from 1:35 to 1:40.  And my correction factors have changed.  And I'm still going low.  And I'm scared to bolus.  Yesterday afternoon I forgot to bolus for my snack.  You know how high I ended up? 217.  I should've been in the 300s.  I've been so focused on not going low, that my functionality as a blogger is severely lacking.  So excuse the brief post, but hopefully this low-ness will be fixed soon.

"You may have to fight a battle more than once to win it."  Margaret Thatcher

Summer Lunch

Irrationally Rational

I went home for Memorial Day weekend.  It's just so much easier to deal with the heat in lots of space (and at the neighbor's pool.)  My original plan was to have an early dinner with my parents and then head back to my apartment right after.  Those plans changed when I went to a baseball game and cookout with my friend (which was awesome!)  I drove back to my parents about an hour after I wanted to leave to go back to Boston.  Before the cookout, I was 302 mg/dL.  So when I got all my stuff together to leave, I wasn't thinking that my BG would affect me.  But there it was, a 55 mg/dL staring at me.  And then 20 minutes later, 50 mg/dL.  I suspended my pump, and then 56 mg/dL and then when I was 59 mg/dL, my temper flared.  My father told me I didn't need to get upset about it (but I clearly was).  And this is where I became irrationally rational.  I yelled back "Well I should!  Because if I get mad I'll get stressed out and stress raises your blood sugar and nothing else is working!"And twenty minutes later, I was 81 mg/dL.

Low, Low and More Low

The weather here has gone from raw, rainy and cold to summer.  And with this, my BGs have gone from roller coaster, to low.
 

Found 

Yesterday at Girl Genius's gymnastics, I felt a little low, and there was a 45 mg/dL  staring me back in the face.  Two days ago, I was about to complain that Trader Joe's didn't have 4 oz juice boxes until the 6 oz didn't raise me.
And two days ago I was low so frequently that I couldn't run or go to the gym, but I did do an at home workout, which kicked my a$$.
Yesterday after gymnastics, when I stopped to buy test strips, I got a frappucino too.  I bolused for half of it.  And then forgot to bolus for my yogurt.  And the highest I went? 204 mg/dL.

This is the thing though.  I know that I need to lower my basals.  But it's hard to do a basal test when you're eating all the time.  And I've been eating fruit and fruit and, ... more fruit.  Also, the times that I've been going low from day to day are not consistent!  Makes it a lot harder to even figure out where to start.  I'll get there.  Until then, I'll keep my juice boxes and my tabs and my liquid glucose a lot closer.

French Deliciousness

There were no nutrition facts, but these are magical on the BGs

Unicorns! Glitter! And a little bit of Ohh..

Wednesday was one of those days when diabetes was all about unicorns and glitter, and I've been smiling ever since.  Except then I remember the news that my awesome nurse is leaving.

I haven't been with her very long, but I was looking forward to many more years.  I realize that through my blog it may not seem as though I'm shy, but I am.  I trip over my words and I get uncomfortable talking to new people.  And I've never felt this way with her.  And I've never had to say "I think there's something wrong with me."  (with any medical professional) (And I almost didn't)  But I didn't feel uncomfortable at any time during this appointment.  I walk in there and I feel comfortable.  And when things are going really wrong, she has been there to support me.  She helped me figure out that my body is much more sensitive to insulin when my blood sugar is extra high, so when I figure out a bolus over 350 mg/dL, I reduce it by 10% before bolusing.  And it works!  I know that there is a lot of talk out there in the DOC that we are awesome and medical teams don't always know what they're talking about, but I never would've figured this out without her.  Before I made my final decision about switching my pump, I called her to hear what she had to say.  I knew I didn't need her approval, but I wanted to know what she thought.  I value her opinion.

I am sad to see her go.  I am sure that wherever she is off to next will be fabulous and wonderful and I hope that wherever that may be, they will appreciate her.  In the excitement that was finding out my A1C, she told me that my hard work made her day.  I know that she "lives" in diabetes world, and diabetes world is awesome.  But from what I can tell, she doesn't have diabetes and is still awesome and still gets it.  (for you non-D, non-medical people, you'd think that this happens all the time, but it doesn't!).  When I told twitter, I got more responses than I even could've imagined.  And it made me feel so good.  And when I told facebook, all my D friends liked it (or parents of D friends), but no one else did.

And once again, my words are coming out of my brain and they aren't making any sense.  That's what happens when people mean more than words can say.
Forgive my lack of words.  But I'm changing the wording:

"An awesome diabetes medical professional is worth a thousand million words."

We're Everywhere

Friday night I headed out to see the girls compete in the regional synchronized swimming meet.  Competition started around 4, and I didn't show up until about 7.  During one of the routines, Mom pointed out a little girl who has diabetes.  I've heard about her before, and this mother has wanted to talk to me for a few years.  I asked my mother where her mother was, but she was a judge, so she was poolside.

A while later after all the team routines were done, the little girl was near us and her mother was standing behind me.  She went to ask her mom for a sip of water and as she walked past me, her eyes never left my pump.  And then I hear "mom, mom! she has an insulin pump."  And so I walk over, "hi, I'm Briley.  I'm on the Catalinas."  The mother tells me how her daughter has the Omnipod, and asks if I saw her swim.  I had, and I start to explain how I've been wanting to meet them for a long time, and then my mother walks and the CWD mother says, "Oh! you're Cynthia's daughter!"  We talked for a few more minutes until the mother had to go back down to the pool.

D appointment

I did today's post a little differently than I normally do.  Yesterday was latest "endo" appointment, and there were a lot of emotions swirling around in my brain.  So I wrote the beginning of my post before I left.  I didn't know where my emotions would be post appointment, and I wanted to be able to accurately capture all emotions included both before and after this appointment. 


Before:

Today I have an appointment with my D nurse.  I'm excited for this appointment.  I know, it sounds crazy.  But for the first time in a LONG time, I think I'll have an A1C under 8.  And I think the last time that happened was when I saw her and when I had the first one.

But I also have a list of questions I need to ask.  The first being about seeing an endo.  Since I had such an awesome endo as a kid, I feel as though that is the right path.  I won't stop seeing my nurse, because she's awesome.  But there's just something in me that thinks I should also see an endo.

And then the fun questions.  When I was skiing, my 3rd and 4th toes of my right foot got tingly.  I think it only happened in the chairlift, and skiing down the mountain made it go away.  But I still don't like that feeling.  BUT, it could be because my toes are in a tight, enclosed space.  And cold.  Please pray that that is what it is.
But my feet also get tingly when I sit cross legged.  And I sit cross-legged all the time.  I know that sitting like that can enhance neuropathy.  But it's such a habit.  And even sitting here writing this I'm cross-legged.  I am trying beyond anything to stop sitting like that, because it's the only time my feet get tingly.  But Diabetes, PLEASE don't be the cause.  Please let this go away if I stop crossing my legs.  When I get the little pokey thing on my foot, please let me feel it.  Please don't make me walk away crying.

And just this week I wasn't feeling like I was at the top of the game, and as I went to bed Sunday night I realized that I have the classic Celiac symptoms.  This is the one that is most pressing on my mind at the moment.  I have friends and family who have this, so I've certainly eaten this way before, but not as a lifestyle.  Yesterday I tried to eat gluten free to see if my symptoms stayed or went away.  And guess what, they went away.  I know that one day doesn't prove anything, but it's certainly leaning in that direction.  There was more around that was gluten free than I thought there would be, but then as I was getting the kids snacks ready, I just grabbed a piece of cereal (before the milk was in it) and ate it.  If this ends up being a new "thing" for me, that is going to be one of the hardest parts.

My thoughts going into this appointment: C'mon diabetes.  I'm working at this again and now you're going to shove all this at me?!

After:


I AM KICKING DIABETES' ASS!  Yes, I need to tell you about the whole thing, but first, my A1C is 7.2!  At my last appointment it was 8.1.

I go in and do all the boring things (blood pressure, weight(it went up slightly, but I blame the rain boots and jacket), BG test and blood for A1C) and they take my pump(s) to download them.  (And I hope you didn't want a waiting room picture because I never was actually in the waiting room.)  When I was done with her, I went to wait in the exam room and I didn't even time to tweet that I was there before my nurse came in.

She asked how I was, what my basals were, which led to talking about switching pumps and how the meter remote was my deciding factor, waiting for my pumps and their reports to come back and if there was anything else I wanted to talk to her about.  I told her how I had been experiencing a few Celiac symptoms lately (my guess is that it's been a few weeks) and how on Tuesday I ate gluten free and I did not experience the symptoms.  I wanted to make sure she knew that I was not self-diagnosing, but it was the best way for me to test my theory in such a short period of time, and that I would just like to get tested.  I wasn't going to need labs today, but I think that is worth knowing.  She informed me that there are also people who are not Celiac, but have a wheat intolerance, so I may just want to cut back.  This is something I have been trying to do, but now I think I just need to focus on it a little bit more.

We continued on and she asked about my feet, so I told her my tingly feet experiences, and she did the metal vibrating tool thing on my big toe and it felt like forever before I could stop feeling.  She said she does not think I have neuropathy, it's just that when I cross my legs my blood vessels are getting squished causing my feet to feel funny.

And then my pump(s) came back with a ton of print outs and we realized that I've been going high before lunch, so we increased my breakfast insulin:carb ratio.  I told her how I was going low post lunch (a time when I'm frequently getting in the car) so I changed my basals without doing a basal test, but I'm not going low anymore.  Tuesday and Wednesday morning I woke up high, but Monday night I was eating a lot and SWAGing, so I didn't count that as a high BG in the morning, but an unsuccessful SWAG.  She agreed.

And then she said, "let's check your A1C."  And she squealed.  "Are you ready?" as she turned her computer screen to me.  But I couldn't find the number!  And she told me..."7.2"  And as I stammered through composure and smiling and a whole lot of happiness I heard "Look at what YOU did!!"  (And this statement reminded me of something I think George's doc would say)  And I managed to tell her I haven't been this low since before I started college.  If you don't me well enough and want a reference point, that was 2003.  And then even better, "I hope you're going to celebrate tonight!"  I don't know if I squealed or not, but I did when I got back to my car.  And then she told me that this number/drop is even more amazing because it wasn't achieved because of lots of and/or extreme lows.

And then I had to go back out for labs.  I was standing there waiting with all these other people and they were all looking kinda blah, and I couldn't help but smile!  I got my blood taken, scheduled my next appointment, and sat down to text my mom.  And then of course share it with all of you. I'm still riding on this high, and I couldn't be more proud of myself if I tried right now.  

Juice

Last Wednesday, I drove up for synchronized swimming like so many other weeks.  But this week it was different.  This is the last time that I get to swim with my friend.  It was another show, this time at the YMCA we called home last year (they missed us).  That means that I'm not swimming for the normal hour, but only about 5 minutes.  I didn't bother putting on a temp basal, especially since I was in the high 100s before getting there.  Well that was my mistake.  First of all before I got there, I was around 150.  (I got there late) When the show was over 45 minutes later, I was hovering at 80.  By the time I got out to my car, I was low.  I had my handy liquid glucose which I took out and chugged.  And then I went and hung out with my mom in her car.  Between 10-15 minutes later, I was still low.  And we found a juice box in her car, that I stabbed open with my key.  (We found the straw later)  And as I started to drink it I nearly spit it right back out.  And then I looked at the top of the box and noticed the expiration date.  My mother got her car in 2003, and I'm guessing that this juice box might have been in there since day 1.  It was nasty!  (And this morning I had one that expired in 2008).  Pay attention to those expiration dates, because the juice really does taste gross after the expiration date.  However, as my mother said "it's not like the sugar left."  Which is true, and it did work.  But, blech!

Friday Fun!

All my new pump stuff :)

Pink pump site :)

Not only is it new, it's pink!

On Friday, a nurse from Animas came over to my apartment and we sat down and intensely learned all about Animas.  It was nearly time for a site change, so I changed.  Now I'm rocking a pink pump and I'm really excited about it.  There probably should be more to say, but I'm just excited right now :)

P.S.  I didn't actually wear gym shorts the whole time, but I'm more comfortable putting sites in my leg, so I changed so I wasn't dropping my pants in front of the nurse.  Because changing is way less awkward.  

More than a Meetup

You might think I'm crazy.  But I got off the plane, and got my luggage and got into my rental car.  And I got on the highway and my GPS told me that I was going to be on one highway for 9 miles.  So I called Mer to tell her I was on my way.  And it was the first time I ever talked to her on the phone!  I mean, I just got off a nearly 1,000 mile flight, and I'm talking to her on the phone.  Let me also say that I don't do well talking to people for the first time on the phone, and I don't do well meeting people for the first time.  It's the shy thing kicking in and taking control.  And that day, I NEVER had a problem.  And then two hours later, I was there.  In Kentucky.  With/Meeting my friend.  I called my mom, because ya know, parents get nervous when you jump on a plane to go meet someone you met online.

Chow Wagon eating Greater Taters, and mine must have been made the biggest potato in the world.

Karen, you were right.  It was like I had known Mer forever.  And then we went and did all sorts of touristy things.  Like the Chow Wagon.  And the biggest bat in the world.  And Lynn's Paradise Cafe.  And seeing the Garland of Roses which is made at the grocery store.  This was crazy to me.  I assumed it was made at a fancy florist, but I guess it was fancy since the grocery store had ribbons everywhere.

Louisville Slugger Bat

On Saturday, I did nothing but eat, and eat, and eat.  (Oh, you'd like to know how my diabetes reacted?) Well first, I ate chips and guacamole, chicken burrito, chocolate chip cookies, some sort of strawberry dessert deliciousness, Derby pie, broccoli casserole and more.  And!  I never went over 300.  I call that success.  But even more awesome was that, was the feeling of meeting people who included me as though I had been there time and time before.  Even though some people were disappointed I didn't say Bahston.  And we wore fabulous hats.  And Mer won the prize (are you surprised?).  This is thing that I find most amazing about the Derby.  It isn't just one race.  There are races all day.  And there are even races on the turf.  I had no idea!  I'm not a horse person, never have been and never will.  And yes, I've tried for the sake of my cousins, but no, its not for me.  However, this was awesome.  So the fact that I was there for Derby was kinda crazy.    

Derby party

On Sunday, (Mother's Day - sorry mom!), we went out to brunch with Mer's parents and I experienced southern fried food.  And lots of people watching.  And then we went over to Churchill Downs.  It has always been this place that I see on TV once a year, and then, that's only been within the past few years when there's been a fundraiser at my uncle's bar on Derby Day for a therapeutic riding center.  The hats, the betting, the racing: I had no idea.  Churchill Downs is so impressive though.  It's also incredible to me because I love doing things I never imagined doing.  And flying down to Kentucky is definitely one of those things.   

Thank you Mer for such an amazing weekend!  On Sunday as we were hanging out in her apartment, we were talking about DBlog Week, and we both came up with how awesome it would be, but also how it was going to get in the way of telling everyone about our weekend together.  What I like to call an ultimate DOC meetup. It certainly went by way too fast, and now it feels like I should be able to call you up and say "let's get together!"  Except that's the problem with far away friends, you can't do that.  

"There is magic in long-distance friendships.  They let you relate to other human beings in a way that goes beyond being physically together and is often more profound."

Saturday Snapshots

Saturday Snapshots: Inspired by the D365 Project, let's snap a few more D-related pictures and share them again.  

A picture is worth a thousand words, right?  I'm a big fan of using pictures to tell my story, and I've done it a time or two before.

I was trying to figure out the best pictures to post all day, and came up with nothing.  And then I came across this picture that my friend took last summer.  I think it sums up everything I was trying to say with other pictures perfectly.

Thank you Karen for hosting DBlog Week!

If you want to see others' snapshots, check them out here!

Awesome "Things"

Awesome Things: In February, #dsma challenged us to write about the most awesome thing we'd done despite diabetes.  Today let's put a twist on that topic and focus on the good things diabetes has brought us.  

I've mentioned it before; diabetes has brought some amazing things into my life.  I never would have gone here or here or here or here or here. Or here.

But most of all, this is what is awesome about diabetes:

  

And last, but not least

Thank you Karen for hosting DBlog Week!

If you want to see everyone else's awesomeness, check it out here!

Ten Things I Hate About You

Ten Things I Hate About You, Diabetes: Having a positive attitude is important, but let's face it diabetes isn't all sunshine and roses (or glitter and unicorns).  So today let's vent by listing ten things about diabetes we hate.  

I hate that you took my favorite counselor from me when I was a kid. And that that made getting sick in college really scary.  And that when I did end up in the hospital, and awake the thought passed through my mind "at least I didn't end up like Jill."

I hate that you scared me and my parents to death after a 24 hour urine test, simply because we didn't know I wasn't supposed to collect while I had my period.

I hate that because you broke, people think it's my fault if the amount of glucose in my is too high or too low.

I hate that there are kids out there (and probably adults) who use you to get attention.  I hate the situations it has put them in and I hope that there is someone out there to support those people.

I hate that not all things that can influence my glucose are easily measured and predictable, like stress.

I hate that what I've been trained to recognize as symptoms can also be real people feelings.

I hate that while I'm sitting here writing this, I'm just getting mad at you.  You're forcing me to turn away from my optimism and I don't like how it's making me feel.

I hate that you make me feel weak.  I am not weak, but sometimes you take all the power away and I feel weak.  Not just physically, but emotionally.  And bouncing back is HARD.  You send me sweats and shakes and shivers and tears and none of them are welcome.

I hate all the space and money you take up.  Glove compartment, closet, headboard, bedside table, pantry.  And that's just supplies.  Never mind the extra file folder I had to buy in order to keep all your doctor appointments organized.

I hate that some of my best D friends live 3,000 miles away.  The experience is totally worth it, but having my support system so far away sucks.

Thank you Karen for hosting DBlog Week!
If you want to see what other's hate, check it out here!